Self-Care Management Education Using a Pocketbook on Illness Perception Improvement in Psoriasis Patients

Authors

  • Endah Panca Lydia Fatma Medical Surgical Nursing Department of Nursing Faculty of Health Sciences Universitas Brawijaya Malang
  • Dewi Purnama Sari Medical Surgical Nursing Department of Nursing Faculty of Health Sciences Universitas Brawijaya Malang https://orcid.org/0000-0001-7348-1317
  • Dewi Rohmadani Department of Nursing Faculty of Health Sciences Universitas Brawijaya Malang
  • Heni Dwi Windarwati Mental Health Nursing Department of Nursing Faculty of Health Sciences Universitas Brawijaya Malang
  • Akhiyan Hadi Susanto Fundamental of Nursing Department of Nursing Faculty of Health Sciences Universitas Brawijaya Malang

DOI:

https://doi.org/10.21776/ub.jkb.2025.033.03.5

Keywords:

Illness perception, pocketbook, psoriasis, self-care management

Abstract

Psoriasis is an autoimmune disease affecting the integumentary and organ systems. It impacts daily activities and degrades self-esteem. Meanwhile, there is a minimum amount of literature about self-care management education for Psoriasis. Pocketbooks can be used as an alternate learning tool for self-care management by making them more portable among patients. The aims are to foster a positive perception of illness and self-determination regarding Psoriasis. This study evaluated the effectiveness of providing self-care management education using a pocketbook on the illness perception of Psoriasis. The research employed a mixed-methods design, combining quasi-experimental and qualitative approaches. The study involves 30 participants diagnosed with Psoriasis. Participants are divided into two groups: a control and an intervention group. The Brief Illness Perception Questionnaire (B-IPQ) was utilized to assess the participants' perceptions of their illness before and after the intervention. A paired t-test was used to compare pre-test and post-test scores within each group. A two-sample t-test was employed to compare the mean differences between the control and intervention groups. The significance level was set at a p-value of 0.05. The interview data were transcribed verbatim using thematic analysis. The study indicates a difference in the illness perception of patients between control and intervention groups with a significance value of 0.000. Patients report that understanding triggers and management strategies allow for better health. Pocketbook is a practical education approach improving illness perceptions of Psoriasis. Recognizing triggers and adopting management techniques, patients are able to take steps to deal with flare-ups and improve their well-being.

Downloads

Download data is not yet available.

References

1. Zhou S and Yao Z. Roles of Infection in Psoriasis. International Journal of Molecular Sciences. 2022; 23(13): 1-18.

2. Sato Y, Ogawa E, Okuyama R. Role of Innate Immune Cells in Psoriasis. International Journal of Molecular Sciences. 2020; 21(18): 1-17.

3. Parisi R, Symmons DPM, Griffiths CEM, Ashcroft DM, and Identification and Management of Psoriasis and Associated Comorbidities (IMPACT) Project Team. Global Epidemiology of Psoriasis: A Systematic Review of Incidence and Prevalence. Journal of Investigative Dermatology. 2013; 133: 377-385.

4. Damiani G, Bragazzi NL, Karimkhani Aksut C, et al. The Global, Regional, and National Burden of Psoriasis: Results and Insights from the Global Burden of Disease 2019 Study. Frontiers in Medicine. 2021; 8: 1-12.

5. Pasande S. Psoriasis in Resource-Limited Setting: A Case Report in a Remote Area in Indonesia. International Journal of Research in Medical Science. 2022; 10(9): 2011-2015.

6. Krisnarto E, Novitasari A, and Aulirahma DM. Faktor Prediktor Kualitas Hidup Pasien Psoriasis: Studi Cross Sectional. Jurnal Kedokteran Muhammadiyah. 2016; 5(1): 43–51.

7. Balak DMW, Gerdes S, Parodi A, and Salgado-Boquete L. Long-Term Safety of Oral Systemic Therapies for Psoriasis: A Comprehensive Review of the Literature. Dermatology and Therapy. 2020; 10(4): 589-613.

8. Tiemensma J, Kaptein AA, Pereira AM, Smit JWA, Romijn JA, and Biermasz NR. Negative Illness Perceptions are Associated with Impaired Quality of Life in Patients after Long-Term Remission of Cushing's Syndrome. European Journal of Endocrinology. 2011; 165(4): 527–535.

9. Palagini L, Zerbinati L, Balestrieri M, et al. Poor Sleep Quality May Contribute to Dysfunctional Illness Perception, Physical and Emotional Distress in Hospitalised Patients: Results of a National Survey of the Italian Society of Consultation‐Liaison Psychiatry. Journal of Sleep Research. 2022; 32(1).

10. Muscat P, Weinman J, Farrugia E, Camilleri L, and Chilcot J. Illness Perceptions Predict Mortality in Patients with Predialysis Chronic Kidney Disease: A Prospective Observational Study. BMC Nephrology. 2020; 21(1): 1-8.

11. Probosiwi N, Akrom A, Hidayati T, and Saputri GZ. Effects of Modified Brief Counseling-5a on Illness Perception, Compliance with Medication, and Fasting Blood Sugar Levels of Diabetes Mellitus Patients. Pharmaciana. 2020; 10(1): 43-50.

12. Sari DP, Hany A, Christian M, Amalia A, et al. Correlation between Perception with the Need for Structured Education for Psoriasis Patients During the Pandemic COVID-19. Journal of Nursing Science Update. 2020; 10(1): 2829-2832.

13. Chairani R. Pocketbook as a Media of Health Education to Improve Healthy Behavior in Street Teenagers. International Journal of Current Science Research and Review 2022; 5(4): 1318-1322.

14. Permatasari ADW. The Effect of Pocketbooks as Nutrition Counseling Media on Knowledge and Attitudes of Prospective Bride and Groom. Eduvest - Journal of Universal Studies 2022; 2(8): 1-8.

15. Zimmerman E and Woolf S. Understanding the Relationship between Education and Health. National Academic of Medicine Perspectives 2014; 4(6): 1-25.

16. Pourreza A, Alipour V, Arabloo J, Bayati M, and Ahadinezhad B. Health Production and Determinants of Health Systems Performance in Who Eastern Mediterranean Region. Eastern Mediterranean Health Journal 2017; 23(5): 368-374.

17. Rachman RA, Noviati E, and Kurniawan R. Efektifitas Edukasi Health Belief Models dalam Perubahan Perilaku Pasien Hipertensi: Literatur Review. Healthcare Nursing Journal. 2021; 3(1): 71–80.

18. Hidayat R, Kasiman S, and Siregar CT. Pengaruh Edukasi Perawatan Diri (Self Care) terhadap Aktivitas Sehari-hari Pasien Gagal Jantung Kongestif. [Repository]. Universitas Sumatera Utara, Medan 2021.

19. Ziliwu YS, Niman S, and Susilowati Y. Pengaruh Dukungan Edukasi Perawat terhadap Self Care Pasien Congestive Heart Failure: Studi Literature. BIMIKI (Berkala Ilmiah Mahasiswa Ilmu Keperawatan Indonesia). 2021; 9(2): 64-73.

Downloads

Published

2025-02-28

Issue

Section

Original Article

Similar Articles

1-10 of 118

You may also start an advanced similarity search for this article.